Detail-Infos zum Event

Di
23
Mär
Di
23
Mär
18
Nov

free webinar, organized by the European Reference Network for Rare Neurological Diseases

Online, 23.03.2021 - 18.11.2021
Seltenekrankheiten

we would like to inform you about the new free webinars, organized by the European Reference Network for Rare Neurological Diseases (ERN-RND) in collaboration with ERN Euro-NMD and the European Academy of Neurology (EAN). Sign up here

 

·         23 March 2021 | Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity by Harro Seelaar, Erasmus Medical Center Rotterdam, the Netherlands. 

·         13 April 2021 | MR Biomarkers in Spinocerebellar Ataxias by Gülin Öz, University of Minnesota, Minneapolis, USA. 

·         20 April 2021 | Approach to the patient with non-HD chorea by Ruth Walker, Mount Sinai School of Medicine, NY, USA. 

·         4 May 2021 | Better Conversations -Communication Partner Training for language led dementias by Anna Volkmer, University College London, UK. 


·         11 May 2021 | Gene therapy in neuromuscular and mitochondrial disorders (advanced therapies focus), Friedrich Baur Institute,  Ludwig Maximilans University, Munich, Germany. 

·         18 May 2021 | Benign hereditary choreas (paediatric focus) by Kathryn Peall, Cardiff University, UK. 

·         8 June 2021 | MRI pattern recognition in leukodystrophies (paediatric focus) by Nicole Wolf, Amsterdam University Medical Centres, the Netherlands. 

·         15 June 2021 | Update Metachromatic Leukodystrophy (paediatric focus) by Samuel Gröschel & Ingeborg Krägeloh-Mann, University Hospital Tübingen, Germany. 

·         6 July 2021 | Speech as a biomarker in ataxia: What can it tell us and how should we use it? by Adam Vogel, University of Melbourne, Australia.

·         14 September 2021 | Genetic forms of Parkinson's disease by Thomas Gasser, University of Tübingen, Germany. 

·         28 September 2021 |Treatable dystonia & dystonia in inborn errors of metabolism (paediatric focus) by Tom J. de Koning, University Medical Center Groningen, the Netherlands. 

·         5 October 2021 | Adult leukodystrophies/early symptoms of late-onset Leukodystrophies by Fanny Mochel, Reference Center for Leukodystrophies, Institute for Brain and Spine, Paris, France. 

·         7 October 2021 | X-linked adrenoleukodystrophies - Update by Caroline Sevin, Reference Center for Leukodystrophies, Hospital Bicêtre and  Institute for Brain and Spine, Paris, France. 

·         12 October 2021 | Functional gait disorders: a sign-based approach (neurorehabilitation focus) by Jorik Nonnekes, Radboud University Medical Centres, Nijmegen, the Netherlands. 

·         19 October 2021 | Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting (advanced therapies focus), Leiden University Medical Center, the Netherlands. 

·         26 October 2021 | Pelizaeus-Merzbacher disease and related disorders (paediatric focus) by Nicole Wolf, Amsterdam University Medical Centres, the Netherlands. 

·         9 November 2021 | Clinical Outcome Assessments in Ataxias by Thomas Klockgether, University Hospital Bonn, Germany. 

·         18 November 2021 | Pure autonomic failure by Alessandra Fanciulli, University Hospital Innsbruck, Austria. 

 

 

 

Kontakt:
Sekretariat Zentrum für Seltene Krankheiten
Vorname:
Karin
Nachname:
Balmer
E-Mail:
rare@insel.ch